Founder and Chairman | |||
Emma Abdullah ~ Founder and Chairman. Medical bit:I can’t provide any medical advice at all, but what I can offer is true emotional support, which comes from the heart and be able to share my story with you and my own life experiences and knowledge I have gained since my transplant 11 years ago. On 02/01/2011, I had a small bowel, pancreas, stomach and liver transplant with gall bladder removal and splenectomy at Addenbrookes Hospital in Cambridge it took nearly 18hours & I was in hospital for nearly a year, with quite a lot of the post-transplant complications that can occur (this does not happen to everyone). I have a blood disorder called Myeloproliferative disorder which is managed by blood transfusions, chemotherapy drugs and daily blood thinning injections. This also controls my platelet dysfunction. I’ve had an ovary removed due to having Endometriosis, which requires iron transfusions too & Osteoporosis which is treated mainly with an annual infusion. I’ve had quite a lot go on, but not one of our journeys are the same, so NEVER compare yourself to another one of us transplantees’.My Aim for MOTS:Raise enough money to buy accommodation for members and their families to stay in, which is owned by us. A BIG aim I know, due to prices in Cambridge. I would also like to be able to offer more financial support whilst our members are at home recovering from surgery, which would take away that extra bit of stress. I want to raise awareness of MOTS as a charity.My duties: Covering all areas of the day to day running of MOTS, which consists of promoting us, gaining fundraisers, supporting members and their families by providing them with emotional and financial support. We now have our 1st charity shop/office where we are based in Newport & are running day to day management of this too. I’m so proud of this baby!! | |||
Trustees | |||
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Sam Abdullah~ Treasurer Sam is our treasurer and deals with the financial side of MOTS and helps Emma with the paperwork, fundraising and awareness side of MOTS too! She has also been instrumental in getting MOTS off the ground & continues to be involved in all key areas of MOTS. Sam is sister in law and best friend to our founder. She has seen everything Emma has gone through and understands her transplant history and complications. Before helping Emma get MOTS established Sam was a health care assistant for the NHS and now studies accountancy to help her role of treasurer. |
Sarah Abdullah ~ Secretary Sarah . |
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The Committee | |||
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Rachael Green Rachael has had a stomach, small bowel, large bowel & pancreas transplant. She produces our newsletter, helps us secure funding from companies, is involved in fundraising and helps with our social media pages. She also helps to provide emotional support to our members.
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Claire Duell Claire is mum to Ollie aged 10, who has had a stomach, small bowel & pancreas transplants. She wanted to join MOTS as she feels raising awareness for bowel transplant and the support that you get from being part of this group is such a lifeline for a lot of people. She will help with the paediatric side of MOTS having been there herself. |
Jenny Pinkstone Jenny is our founder, Emma's mum and has helped with MOTS since the charity began. Jenny sends out our members birthday and special day cards. |
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Alison Jones-Mooney Alison had a kidney & pancreas transplant. She uses her 4 years transplant experience to help and support others during their transplant journeys. |
Laura Laura has had a bowel, liver and pancreas transplant in 2021 and is a Macmillan Cancer Nurse Hi I'm Laura and my background is in cancer care, but this has had to evolve as my health changed. As part of my role, I currently help cancer patients with completing PIP applications and I would be happy to offer this service to any MOTS members Lets join together and build each other up, one brick at a time. |
Kim Hughes Kim helps us support those members and families that are in the paediatric services. She is mum to one of our child members, Poppy, who had a small bowel, large bowel, pancreas and stomach transplant in 2014. |
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Grainee Skinner Grainee is a health care assistant and used to work at Addenbrooke's Hospital where she cared for a number of our members following their transplants. She fundraises and helps us raise awareness. |
David Abdullah I’m David, Emma’s husband and I have been by Emma’s side since this all happened. I used to mix her antibiotics and run these through intravenously for her. I used to set up the TPN, (feed) and I would also change her line dressings when Em first came home from hospital. I was shown how to help her with her intense physio programme and learnt how to move her safely in and out of bed, and from sit to stand positions, as at the beginning of this, Emma had lost most of her mobility. I wanted to be on the committee because I have seen how much of a difference Emma has been able to make to members lives. Mots means the world to Emma and the team she’s created to help the running of the charity. My Duties:I say I am the Vice President of MOTS, but Em just glares at me, so I think that’s a NO!! Haha!! My part is to help deliver the Christmas Hampers up to Cambridge, deliver hugs to members that are in hospital, and I also deliver and collect orders for the charity shop. I built the MOTS office, when Emma got the keys to the charity shop, and I have occasionally dressed as Olaf for a hospital visit. |
Pheobe Abdullah Hiya, Im Pheobe and Emma is my mum. I was 16 months old when my mum had her transplant. I am nearly 13 and I have seen everything my mum has gone through. I know how bugs can affect her more and I have seen how family life changes. I help my mum in the office and with the Hugs and Christmas hampers we do for MOTS members. I help out with fundraising too; I have taken part in the Asda bag pack that we done and I have took part in a marathon with my Dad and had lots of sponsors! Now I am older, I want to help others who are a similar age to me by speaking with them and letting them know they are not alone. I would like to create a snapchat group for kids my age that go through the same thing as me. |